Friday, November 6, 2009

Friday, November 6th, 10:44pm

Mom, Dad and I went over to see Ken around 6pm this evening. It started out very good. We had a nice conversation, and we looked at pictures and cards the kids had made, and really enjoyed ourselves.

When we got back to his room, he started getting upset and impatient. He thought his medicine was coming too late. He asked for a supository, and didn't understand why it was taking so long to get there. When we requested it, I think they thought it was to be with his evening medicine which usually is at 9pm.

A lot of frustration from the past months started to come to the surface. He lost his temper a bit with his nurse (who, I must say was being a total "See You Next Tuesday") and was able to vent off some steam.

The thing is . . . they forget some of his medicine (like Keppra) unless I bring it up. They forget to use the numbing cream (lytocaine, I think) when putting in the catheter. He waits 30 to 45 minutes for a bed-pan, and when he is finished, he waits an additional 30 minutes or so. One day, they forget to bring him breakfast. He is supposed to wear the splint on his right hand from 9am to 5pm. When I get there between 6:30 and 7pm, it is still on.

If it were one thing, I could understand, but this seems to be one thing after another. And I picked the place. I hate leaving him when he is upset. He is alone and he is scared. I stayed as long as I could . . . till someone came with the bedpan.

Mom and Dad went to the lobby to wait for me at around 8pm or so. They waited down there for 2 hours for me to get Ken to a calm place. Bless them for that! :)

He gets so scared sometimes. He is being so brave, really. I don't know if I would be able to go through this with the grace that he is.

In other news, the trash party is tomorrow. Mom and Dad and I got a lot done today: the whole 2nd floor is done, so that is good. Just the basement left, so that should go quickly. I need to ensure Ken gets his laxative much earlier tomorrow, so I'll have to break up the party by 5pm or so. Mom and Dad have been such a strong support for me by driving all this way. I didn't realize how much I needed someone here with me until they showed up.

We are going to begin the sale of this house immediately. And I will begin the search for a new place on Monday. Ideally, I would like to have Ken discharged into the new house (around the first week of December or so). I gotta sell the Mercedes this week. Going to see if Meredith can help me out with that one.

His speech is getting better. Dad seems to understand EVERYTHING he says! We'll have to keep him here to translate for a few more weeks! :)

More tomorrow. Thanks readers.

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